Sunday, November 11, 2007

Still working towards the 8 month mark

I would be so grateful for your prayers for myself and our Johnny. Today we visited the new church again and again absolutely LOVED everything about it! The message was so much what I needed to hear and even confirmation of what God's been telling me in other ways too (Isn't God cool how He does that?). Before the service was even over what I had just been reminded of was already being tested. That familiar feeling came back when my body tenses up, I feel strange, and begin to shake.... a seizure was about to happen and at this point there has always been nothing I could do to stop it. Jim could see me popping anticonvulsants and asked me if I was okay and when I shook my head he got me out of there fast. There were a few long minutes where I just cried because I knew that I was at the point of no return and after all these months and right before getting my license back I was going to have a seizure. I prayed and prayed and my body relaxed and eventually it WENT AWAY!!!! I'm still seizure free!!!!!!!!! Praise God as I have no doubt at all it was an answer to prayer because I was definately past the turning point in the past!

This was a great wake up call that I still need to continue to not get over confident regarding my health. It's been a very fun and exciting week but I am exhausted beyond my physical limits and should have known better (but did we ever have fun while it lasted!!!!).

When I posted a couple posts ago that we were headed for trip 10 to Disneyland I was wrong again. Johnny suddenly started acting and feeling very weird. Once again was complaining of his "bones shaking" and was feeling week. His eyes looked strange and totally out of it. We tried to get him to stand up and he was so weak he fell right down. So instead of Disneyland we headed to urgent care. Praising God again as some good came from this. Johnny is being referred to the Chief Pediatrician to try and get him the help he needs. Clearly something is not right!

So it's been a week filled with some of the most fun we have had in a very long time, and some not so fun stress. I'm now heavily drugged (to help avoid the seizure) and ready to crawl on the couch for a day of pizza and movie..... Good times!

Thanks for your prayers!!!


ManyBlessings said...

Oh Angela! How frightening and yet PRAISE GOD the seizure let go! Sounds like Johnny may be following in your path. :( Praying, praying for both of you.

Lisa said...

Praying for you and Johnny, Angela. That sounds really scary! May God hold you in the palm of his healing hand!

Ericka said...

Don't hate me for saying this, though I won't blame you if you did. This is coming from someone who is completely objective and is from love, I promise.
When I heard that you had bought Disneyland tickets, I got nervous. All over the park are signs, Do not ride....prone to seizures.... flashing lights, etc. I got scared for you and Johnny. I don't know, but all that shaking and movin' may jostle some stuff around. It's just a thought. Have you kept a seizure journal on you and Johnny? Please just ignore me if you had, these are just thoughts I've had while praying for you two and thought maybe I'd share.
Please take care - I can not believe you have made it this long with no license. You have the patience of a, well, you know the saying......

Angela said...

Thank you so much for your prayers and kind words. I'm just so excited to still be seizure free!!

Erika-- I just couldn't imagine you ever saying something to offend me! ;) Thanks so much for looking out for us. You are so right. I have found that the Tower of Terror (unfortunately my favorite ride!) does have lights that make me feel uncomfortable. And the Matterhorn (is that what it's called?) and Indiana Jones are too rough of rides. So I pretty much avoid them. I do well on the rest and Johnny seems fine on the rides he's willing to go on (the little kid ones).

This week was too much for me physically I think. The nonstop scheduale is just not good for us. I justified each thing because they were all things that could only happen this week like seeing friends from out of state, our sons birthday, and the get together at our place for the adoption group. It was a great reminder that I just can not go and go until I'm exhausted.

Thanks again so much for your prayers. Slowly I'm learning my lesson and am WAY better then I used to be.

As far as Johnny--- tracked his seizures and they happen at all different times of day or night and circumstances. I can't find any connection at all to what's causing them.

The Haiti Lady said...

I have to agree with what Ericka said. It may not be a coincidence that you have been seizure free (as well as Johnny) until you began the Disneyland trips. hhhmmm....gotta think this one over!
Love ya,

Ericka said...

Shoot! I was so hoping there would be SOME connection somewhere, somehow. I don't think we can ever underestimate how 'running on empty' affects us. I am doing it right now and am feeling the effects so I completely 'feel ya.'
It's just so frustrating to not have all the answers esp for our babies (I say this in my best pouty voice).
Well, I think the best thing I can do is pray, pray, pray and then pray some more.
The pictures from Vera's party were SO nice. It was so nice putting faces with names :)
I love ya hon - breathe in some of that nice, warm CA air for me :)